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Parents of SMA sufferers hold protest in Zagreb, meet with PM, health minister

Author: Roberta Mlinarić

ZAGREB, Jan 26 (Hina) - The Kolibrici association of parents whose children suffer from spinal muscular atrophy (SMA) held yet another protest rally on Saturday, outside the government offices in Zagreb, asking that the Spinraza drug be made available to all SMA sufferers and calling for repealing the Croatian Health Insurance Agency's decision (HZZO) not to make the drug available to patients older than 18 and those on life support.

(Hina) rml

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