The two associations staged the protest asking the government to provide the patients with the drug, which is a very expensive medicament, with one dosage costing HRK 640,000.
"Plenkovic promised us that Health Minister Milan Kujundzic would define a plan within two weeks and that based on available medical documentation, he would say how the treatment of each child would proceed," the head of one of the protesting associations, Ana Alapic, told reporters after the meeting with the PM.
Sprinraza is a new efficient drug for the treatment of spinal muscular atrophy and it was approved by the European Medicines Agency (EMA) in early June.
An analysis of the draft budget for 2018 has shown that the government and the Health Ministry have not secured budget funds for such drugs, the two associations said, adding that this was the reason for today's protest.
Spinraza is not on the Croatian Health Insurance Institute's (HZZO) list of prescription drugs.